Hey everyone, its been a few days since my last post but I wanted to give you all an update about my diagnosis. As posted earlier, I have had several tests to try and come up with a diagnosis for the shortness of breath. My doctors have now diagnosed me with Shrinking Lung Syndrome, which is a complication of systemic lupus (sle). Basically what happens is that lungs become inflammed from inflammation and shrink in size and volume and ability to hold air. There is no cure for this complication, just treatment aimed at stopping the progression of the disease and gaining back a little of the lost function. Right now, I am at about 70 percent function. (so no plans on running a marathon). The treatment is corticosteroids and pulmonary therapy. My doctors had thought about delaying the next chemotherapy treatment because of this but as of right now, we are scheduled for this Tuesday. The chemo is suppose to help. Through all this, I am positive I will get better and I thank each of you for your support and for reading my blog.
In other news, I am going to attempt to play golf today with Adam! Of course I will have to ride in a cart which Im not a huge fan of because I believe walking a golf course is not only good exercise but also helps you concentrate on your game. Oh well, at least I am going to get out and enjoy the weather this weekend. I hope each of you get out enjoy the weather with your family and friends. God is good!
Kyle L. Norsworthy
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