Yesterday I had my third chemo treatment. I arrived at Uk hospital at 8 am which is when my treatment starts but after getting in my room the doctor called and said to wait unitl the biopsy results of the lymp nodes came back (they were suppose to be back on Wednesday.) The results came back as negative for lymphoma so I was very happy with that. The chemo then started around 2 P.M. Fortunately, I was still able to make my 6:30 Walk for Lupus Now meeting.
During the treatment, my doctor came to visit and we talked at length about my condition. She said that only 73 cases have ever been reported for the Shrinking Lung Syndrome so it is very rare. In a couple of weeks I will be starting a clinical trial for this condition that is aimed at better understanding the phenomenon. Basically, I will wear a magnetic device on my sternum and back that track the signals between my lungs and diaphram (which is what causes the breathlessness). Now, what this will help will be nothing but it will help doctors better understand what his happening in this complication of Lupus and how to treat it.
I have also been starting to plan a trip to the Cleveland Clinic for futher evaluation of my lupus and to determine if the treatment I am currently on is the best for me. I will give you more updates as that develops.
In other news, I can't wait for the game today. Unfortunately I have to work but the Bank will be putting the game on all in-branch T.V.s so I wont miss a thing! This is one of my favorite times of year because of March Madness, the warming of the weather, and the new season of the Cincinnati Reds!
Until Next time, thanks for reading my blog
Kyle
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You are such a strong person and I thank you for sharing your health issues with us in this way. There are many people who care for you and want you to be better!
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